Pakistan to issue first ever haemophilia guidelines for patients
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KARACHI: Haemophilia Foundation Pakistan in collaboration with World Haemophilia Federation has started drafting of guidelines to ensure treatment of haemophilia patients as per international standards.
In this regard, National Haemophilia Treatment Guideline Conference was organised at a local hotel under Haemophilia Welfare Society Karachi in which medical experts from different cities of country participated.
Medical experts said that with this guideline, doctors and other medical staff will be able to provide treatment and care to hemophilia patients according to international standards and haemophilia patients will also be able to live normal life like healthy people.
Raheel Ahmed, founder CEO of Haemophilia Welfare Society said that there is no government-level treatment facility for such patients in Pakistan and accordingly there is no haemophilia hospital, due to which people affected by it and their families suffered here and there for treatment.
He said that there may be more than 5,500 haemophilia patients in Sindh alone, out of which more than 1,000 have been registered with Haemophilia Welfare Society.
Other speakers Director Sindh Blood Transfusion Authority Dr. Durre Naz, Dr. Munira Burhani, Dr. Tahira Zafar, Dr. Shehla Sohail, Dr. Shabneez Hussain, President and Advisor Hemophilia Foundation Pakistan Masood Farid, National Hemophilia Coordinator Pakistan Dr. Hassan Abbas Zaheer, Dr. Sarfraz Jafri, Secretary General Pakistan Medical Association Centre Dr. Abdul Ghaffar Shoro, Dr. Lubna Zafar, Anisur Rehman, Syed Fakhr Alam, Hemophilia Foundation President Abbas Ali and Advisor Hasan Raza also spoke.
Speakers appreciated efforts of World Federation of Haemophilia for providing free injections to patients in Pakistan on humanitarian basis.
Published in The Daily National Courier, January, 05 2023
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