For the sake of ailing humanity

Editorial 6 hours ago
For the sake of ailing humanity
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There is no denying that Pakistani philanthropists are among the best in the world as they contribute their bit for the suffering humanity.

There charity is proverbial and during the holy month of Ramazan, the charitable works are the manifestation of thier unmatched Charity. In the holy month of Ramadan, the good people turn to charitable organizations with their donations, serve them and certainly create a source of goodness for themselves. There is a long list of organizations working for good and welfare in Pakistan, and thanks to the good people, all these organizations perform their services throughout the year. 

There is no doubt that the good people of Pakistan hold a prominent position in this regard all over the world. The services of the good people in combating these harmful diseases are unforgettable.  Thalassemia is one of the diseases that is spreading rapidly in Pakistan and due to the lack of proper treatment facilities, many children die in infancy.  This dangerous i.e., Thalassemia is a disease that a child receives from their parents.

Its rate in Pakistan is the highest in the world and every year about nine thousand children suffer from the blood disease.  According to a research report, a good number of people in Pakistan are thalassemia carriers and they do not know that they are sufferimg from thalassemia.  As soon as they get married, If there are, they cause a patient with thalassemia to be brought into the world. There is a high tendency for marriages between relatives in Pakistan, due to which the prevalence of genetic diseases like thalassemia is increasing. Therefore, pre-marital screening has been declared essential to identify couples at risk.  Pre-marital thalassemia screening laws have been implemented long ago in the provinces of Sindh and Balochistan. In 2012, the Punjab Assembly made premarital thalassemia screening mandatory, but due to its non-implementation, five to six thousand children are born with thalassemia major in Pakistan every year.

Many countries in the world have enacted premarital screening laws to prevent this hereditary disease.  In Cyprus, a combination of premaritalA and prenatal screening has helped reduce the number of children born with this disease to zero. Similarly, in Saudi Arabia, six years after the implementation of the premarital screening program, the prevalence of thalassemia has decreased by more than 70 percent.  Along with Saudi Arabia, premarital thalassemia screening has been made mandatory in the United Arab Emirates, Iran, Turkey, Indonesia, Malaysia, Singapore, and Thailand, etc. Such screening programs can only be successful if the population is educated on a large scale about this blood disease. According to a survey, more than fifty percent of the population of Pakistan is a carrier of "beta thalassemia". 

If two people who are both carriers get married, there is a risk of having a child with thalassemia major in the next generation. Such couples can have children with 25% healthy, 25% thalassemia major and 50% thalassemia minor.  Identification of these carriers can help reduce the burden of disease in the country. Most children with thalassemia are born healthy, but symptoms develop in the first two years of their lives and are visible on any test.  During physical examination, the possibility of thalassemia can be detected in children due to symptoms of thalassemia such as facial bone deformity, enlarged spleen, and swelling in the abdomen. For a long time, there was no institution for thalassemia patients in Pakistan and such children died within a few months of birth due to these complications.  In 1978, Nazim Jeeva founded the Fatemid Foundation. Currently, 10 centers of the Fatemid Foundation across Pakistan are providing blood components to thalassemia patients free of cost after testing on the latest machines.

Along with this, all medicines are also provided free of cost to registered patients.  It is also an honor of the Fatemid Foundation that today there are also registered patients who have reached the age of 40 to 48 and by that time they Fatemid is benefiting from the services of the Foundation and there is no doubt that the lives of thalassemia patients who have reached the age of 40 are indebted to the Foundation because if they do not receive blood and medicines tested on modern machines regularly, they may never live such a long life.  The administration of the Foundation says that the youth of the Pakistani nation are second to none in donating blood. Whenever the youth are called, they are ready to donate blood. Similarly, greetings are also due to those philanthropists who are continuing to provide medicines to deserving thalassemia patients.

 There are a number of organizations  which are not only ensuring the supply of healthy blood transfusions for children suffering from thalassemia, but these  foundations have established laboratories equipped with modern machines to eradicate this disease where daily, the families of the patients and the general public are being tested free of charge for thalassemia careers so that this deadly disease can be eradicated from the future generations and a healthy society can be established. But improvement measures still needed. In the holy month of Ramadan, cooperate with all the institutions including the Foundation that are preparing children to fight this deadly disease and providing medicines for them. At the government level, the Thalassemia Unit in the Military Hospital Rawalpindi is also performing valuable services and the work of bone marrow transplant has also been going on here silently for a long time.

 This important institution of the Pakistan Army also deserves tribute for this work.  In the holy month of Ramadan, all the philanthropists are requested to patronize these institutions on a regular basis so that Pakistan can permanently get rid of this harmful disease. It is good to see that there is decrease in the number of Thalassaemia children. In the past the number of children suffering from this disease was 08 to 12 years, but  institutions working against for Thalasaemia patients, thank the modern technology, effective drugs, healthy blood and standard treatment, the lives of these sick children have reached 40 to 50 years.

Due to lack of awareness about hereditary disease, the rate of spread of this disease is increasing.

Both boys and girls must have a thalassemia carrier test before marriage, but the thalassemia test must be registered on the national identity card so that the disease cannot be transmitted to future generations. Along with philanthropists, the government should  also provide full support to all such organizations that are providing services for patients suffering from this dangerous disease. 

Our Correspondent
Our Correspondent https://www.dailynationalcourier.com/author/our-correspondent
Daily National Courier is a leading morning English newspaper of twelve pages covering all international and national political developments on 24/7 basis.

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